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A Copley Publication

 Wednesday
April 7, 1999

Volume 64, Number 90   50 Cents

 
Michael Shultz could light up a room with his smile, according to his aunt Maria Isaacs.  The Naperville baby, known to family and friends as "Miracle Michael", died from Oesteogenesis imperfecta Saturday at Central DuPage Hospital.
Scott Panella/ Staff Photographer
"People take things for granted.  They take their children for granted.  They take life for granted.  Michael made us look at our lives and realize what's important."
Beth Shultz

A Fighter to the end

Miracle Michael loses battle against rare tissue disease

 BY JANE LELUGAS            STAFF WRITER

 

Beth and John Shultz didn’t get the miracle they hoped for.

Their young son Michael died Saturday at Central DuPage Hospital, ending his eight-month fight against a rare connective tissue disease called osteogenesis imperfecta.

Michael was born with the most severe form of OI, which left him vulnerable at the slightest touch to bone fractures.  Michael endured much pain, and his condition often plummeted, but his family marveled at how he rallied time and again when there seemed to be little hope.  They called him their “Miracle Michael,” and his story touched many people in the Naperville community and beyond.

But the end came Saturday afternoon when Michael couldn’t rebound from surgery performed the day before to correct problems with a central line attached to his heart.

Beth said she was five minutes away from doing some Easter shopping for her 4-year-old son, Anthony, when she received the call from the hospital staff that Michael’s situation had deteriorated.

Although she and John had been through this drill before, Beth said she knew this time it was different.  John was on his way, and Michael held on just long enough for his father to arrive and say “I love you” one last time.

“My head tells me he’s no longer hurting, but my heart has never felt such pain,” said Beth, who doubts she’ll ever be able to make sense of the plight dealt to her son.

“He’s at peace now, but it’s really sad to lose him,” said Michael’s aunt, Marla Isaacs.

Beth said Michael just had been accepted into an OI experimental treatment program at Shriners Hospital.  Although time ran out for Michael, his parents want to offer hope to other children suffering from the disease.

On Aug. 5, which would have been Michael’s first birthday, the Schultzes are planning a golf outing to raise money for OI research.  Sports celebrities have been invited to the event Michael’s parents began organizing six months ago.  Beth said they’d like to make the golf benefit an annual event.

They also plan to turn the Baby Miracle Michael Fund, established in November at Harris Bank in Naperville, into a memorial fund.

“Hopefully, with what we learned through Michael, someone else won’t have to go through what he did,” Beth said.

While Michael’s family mourns his loss, they also celebrate the gift he gave them.

“He has changed my life forever, and a lot of people’s lives,” Beth said.  “People take things for granted.  They take their children for granted.  They take life for granted.  Michael made us look at our lives and realize what’s important.”

Visitation will be held from 8:30 to 10:30 a.m.  Wednesday at Friedrich-Jones Funeral Home, followed by an 11 a.m. Mass of the Angels at St. Peter and Paul Church.

 

How to help

What: Contributions in Michael Shultz’s memory may be made to the Baby Michael Miracle Fund.

Where:  Harris Bank, 1284 Rickert Drive, Naperville, IL 60540.

Also:  Donations also may be sent to the OI Foundation, 804 W. Diamond Ave., Suite 210, Gaithersburg, MD 20878.

 

 

 

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